Welcome to the
SSIEM-DG Academy
Glycogen Storage Disorders: a focus on types Ia-Ib-III-IX.
This is the 6th SSIEM –DG (Society for the Study of Inborn Errors of Metabolism – Dietitians Group) course and it will take place virtually on February 12th-13th, 2025.
About the SSIEM-DG Academy
Find out more about the SSIEM Dietitians Group Academy.
Who are SSIEM DG?
The SSIEM-DG is a sub group of the SSIEM and aims to provide education and a platform for networking for dietitians and nutritionists working in the field of inherited metabolic diseases (IMD). The group was founded in London 2008 and was formally established in 2010 as a sub-group of the SSIEM.
The SSIEM-DG welcomes members from all countries in the world. Please visit our webpage for more information and our committee members.
What is the purpose of the SSIEM DG Academy?
For many IMDs, diet therapy is the fundamental treatment. Metabolic dietetics is a highly specialised area and the aim of the SSIEM –DG group is to provide access to training, education and research to help provide the best available practice.
One main aim of the SSIEM-DG is to provide education and training for dietitians and nutritionists caring for IMD patients.
Over the next few years, the SSIEM-DG Committee in conjunction with the SSIEM Education and Training Advisory Committee (ETAC) aims to host a series of educational events providing teaching on key topics of metabolic dietetics. These courses will be taught by expert dietitians and other professionals in the field and include plenary lectures, practical workshops and new research work. Starting from 2021, five academy courses have been organized, academy courses have been organized, and the diseases covered so far include PKU, MSUD, MMA, UCD and GA1.
Who is the Glycogen Storage Disorders course for?
This course is aimed primarily at dietitians and nutritionists who are new to IMD and metabolic dietetics and want to learn more about practical dietetic management and monitoring of GSD. Doctors with no dietitians in their team, who are providing dietetic management, can be considered for the application.
What are the learning objectives?
- To begin or be able to plan dietetic management for GSD types Ia-Ib-III-IX patients of different ages and clinical conditions.
- To learn more about long-term clinical and nutritional outcomes in GSD types Ia-Ib-III-IX
- To explore advanced tools for monitoring blood glucose levels and how to integrate them into dietary practices.
How to apply?
- Course application is opened from November 7th 2024, please use the link below to submit your application.
- As places are limited, if the course is oversubscribed there will be a selection process and completion of the application form will not guarantee a place on the course.
- In order to submit your application, you will need to upload these documents written in English:
- one-page curriculum vitae
- a few lines expressing your motivation and interest in applying to this course
- a supporting letter from the head of your department.
Academy Fees
- Accepted delegates will be contacted approximately a week after the submission deadline and will have access to the pre-course resources and materials.
- Registration fees:
- SSIEM members that have paid a 2025 membership fee: free
- Non-SSIEM members:
EUR 110.00 for delegates from high income countries, EUR 60.00 for delegates from middle income countries and EUR 30.00 for all other countries. Details of Countries can be found on the SSIEM website. Non-members are encouraged to become SSIEM members – please see membership information on the SSIEM website.
Certification
Delegates who complete more than 75% of the teaching time can choose to undertake a multiple-choice test, which will be evaluated by the SSIEM DG Committee. For attendance at both days a non-CME ETAC certificate will be awarded.
Contact
For further information please contact: lew@studio12.co.at
Programme
Pre-course activities
1 month before
fill out the attendee-survey
2 weeks before
– watch one recorded lecture for self-study
– read the case studies of workshops in advance
February 6, 2025
live webinar at 5 pm CET (4 pm GMT):
Hepatic GSDs (0-I-III-IX): an overview of enzyme defects and clinical characteristics
Terry G.J. Derks (NL)
Academy Days
Wednesday, February 12, 2025
| Time (CET) | Title / Speakers |
|---|---|
| 10:00- 10:15 | Welcome and introduction Alice Dianin (IT), Anne Daly (UK) and Marjorie Dixon (UK) |
| 10:15- 11:00 | Lecture 1: General principles of the dietary management for hepatic GSDs Joanna Gribben (UK) |
| 11:00- 11:45 | Lecture 2: Starch therapy for hepatic GSDs Helen Mundy (UK) |
| 11:45- 12:00 | Break |
| 12:00-12:45 | Lecture 3: Dietary management of children within the first 2 years of age Julia Ackrill (UK) |
| 12:45- 13:30 | Workshop Live: Case 1 – a child with GSD 1a Rachel Skeath (UK) |
| 13:30- 14:30 | Break |
| 14:30- 15:15 | Lecture 4: Clinical and nutritional peculiarities of GSD Ib Arianna Maiorana (IT) |
| 15:15- 16:00 | Workshop Live: Case 2 – A child with GSD Ib Soraia Poloni (BR) |
| 16:00- 16:15 | Break |
| 16:15- 17:00 | Lecture 5: Dietary management GSD III Roberta Pretese (IT) |
| 17:00- 17:45 | Workshop Live: Case 3 – A child with GSD III Roberta Pretese (IT) |
| 17:45- 17:55 | Wrap-up and conclusion Alice Dianin (IT), Marjorie Dixon (UK) and Anne Daly (UK) |
Thursday, February 13, 2025
| Time (CET) | Title / Speakers |
|---|---|
| 09:00 – 09:15 | Welcome and introduction Benedicte Samba (FR) and Charlotte Ellerton (UK) |
| 09:15 – 10:00 | Lecture 6: Long-term issues of current nutritional treatments over the ages and future therapies Kaustuv Bhattacharya (AU) |
| 10:00 – 10:45 | Lecture 7: New technologies for glucose monitoring in GSD and impact on dietary management Alessandro Rossi (IT) |
| 10:45 – 11:00 | Break |
| 11:00 – 11:45 | Workshop Live: Case 4 – A child with GSD Ib Foekje De Boer (NL) |
| 11:45 – 12:50 | Lecture 8: GSD types I and III: dietary treatments in adulthood Elaine Murphy and Charlotte Ellerton (UK) |
| 12:50 – 13:50 | Break |
| 13:50 – 14:35 | Workshop Live: Case 5 – An adult with GSD Ia Julio Cesar Rocha (PT) |
| 14:35 – 15:20 | Workshop Live: Case 6 – An adult with GSD Ia Joelle Wenz (FR) |
| 15:20 – 15:35 | Break |
| 15:35 – 16:20 | Lecture 9: Clinical and nutritional peculiarities of GSD type IX Rebecca Halligan (UK) |
| 16:20 – 16:50 | Multiple-choice final test and Test solution (live) Marjorie Dixon (UK) |
| 16:50 – 17:00 | Conclusion – End of Meeting and future appointments Alice Dianin (IT) and Benedicte Samba (FR) |
Application
The application deadline is December 12, 2024 (midnight CET).
The application platform is closed.
Dietitians Group Committee
Júlio César Rocha
Lisbon, Portugal
Alice Dianin
Verona, Italy
Marjorie Dixon
London, UK
Anne Daly
Birmingham, UK
Charlotte Ellerton
Birmingham, UK
Bénédicte Samba
Paris, France
Soraia Poloni
Porto Alegre, Brazil
Helle Skandorff Vestergaard
Copenhagen, Denmark